The ALS MND Patient Fellows Program helps people with ALS MND to participate in the largest annual symposium dedicated to ALS MND research.  The 2019 International Symposium on ALS MND will be held 4-6 December 2019 in Perth, Australia. The ALS MND Patient Fellows Program anticipate funding up to five Patient Fellowships for the Symposium and applications for a Fellowship close 19 August 2019. People diagnosed with ALS or MND may apply.

ALS Untangled is an international network of physicians and researchers investigating alternative and off-label treatments for ALS/MND. People with motor neurone disease (known as amyotrophic lateral sclerosis or ALS in some parts of the world) often consider alternative treatments, based on information gleaned from the internet. These can be expensive and some are potentially harmful. Moreover, the evidence presented for the efficacy and safety of these treatments is often sketchy and frequently inaccurate.

MND Australia, in partnership with MND WA, is proud to host the International ALS/MND meetings in Perth in 2019. This will be an opportunity for the Australian MND community to come together with their peers and leading international researchers from around the world to present and debate key innovations in their respective fields. All meetings will be held at the Perth Convention and Exhibition Centre.

On 26 June the Financial Services Council (FSC) issued a press release announcing a moratorium on genetic testing and life insurance captured under FSC Standard No 11. The moratorium allows Australians to get up to $500,000 of life cover without disclosing an adverse genetic test result.

Over 150 occupational therapists, speech pathologists, physiotherapists, dietitians, social workers, COS, MND Clinic Coordinators, doctors and others from across NSW and beyond attended the 8th Biennial MND NSW Special Interest Group (SIG) workshop on 2 July 2019 at West Ryde. This year the MND SIG workshop was at capacity six weeks out from the event. It is a positive sign of the commitment clinicians and community care professionals who work with people living with MND have to improving their knowledge and clinical practice for the benefit of those living with the disease.

Subscribe to news and updates