Blog

This week is National Volunteer Week, and we'd like to take the opportunity to thank all our amazing volunteers. 

In early 2025, Anna said goodbye to her husband Nick, following his brave battle against MND. Anna and Nick shared many happy times together, but as his condition progressed, motor neurone disease took away the things he enjoyed doing most. He could no longer enjoy some of his favourite foods or adventures to beautiful locales. However, most devastating for Nick was that MND robbed him of the future he dreamed of - it quickly put a halt to sharing precious moments and making memories with his family.

Between January and March, we connected with carers who are part of the MND NSW carer program. MND NSW would like to thank you for generously giving up your precious time and sharing your unique experience with us. It was an absolute privilege to hear your stories.

We'd like to say a big thank you to Kylie and Jenna who hosted the MND Walk for Elisa Baker with family and friends, held on April 26. They raised over $6,300 for MND NSW, all in memory of Elisa, who sadly passed away from MND earlier this year. Jenna has shared their story about the event:

Another month has flown by, and the MND NSW Info Line has been busy, responding to over 100 enquiries. In April, common questions were about clinical trials, what MND doesn’t affect, itchiness and sleep difficulties.