Do you want to know what’s new in motor neurone disease research, current clinical trials and effective treatments for MND? Reserve your place at MND Connect, an interactive forum connecting people impacted by MND, with Australia's leading MND researchers. In 2017 this Forum will be held in New South Wales at the University of Sydney. People with a disability and their carers may reserve a disabled parking spot at the venue, or receive a wheelchair taxi voucher or subsidised travel from a regional area to attend this event. Find out more about MND Connect 2017 here.  

Thank you to the Woden Valley Gymnastics Club in Canberra who donated $654.75 from their recent Pyjama and Teddy Bear Week. Pictured are the coaches from the club. A big thank you to everyone who participated and provided their support.

From 1 July, the Older Persons Advocacy Network (OPAN) has been engaged to provide free, confidential and independent advocacy support to older people who are receiving, or seeking to receive, Australian Government funded aged care services. see here for more information  The service focuses on supporting older people and their representatives to raise and address issues relating to accessing and interacting with Commonwealth funded aged care services. More info here http://www.opan.com.au/advocacy/

Are you one of the 46.000 Canberran’s who provides assistance to people living with disability, chronic health problems, mental health issues, are frail aged or are in foster or kinship care? If so then Carers ACT really want to hear from you about what would make Canberra a more carer friendly place that supports you and helps you to reach your goals.

People’s life experiences can tell a powerful story. This story can teach others about the meaning of these experiences, and how they affect a person’s life. Researcher Sarah Remm from the University of Wollongong is currently looking for people diagnosed with MND to share their story about their diagnosis experience. Your story will contribute to a study exploring diagnosis experiences of MND. Click here for more info.

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