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News

Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

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29 July 2026

Grandfather and Grandson Complete 5,200km Ride for MND as Bowral Homecoming Nears

After battling relentless headwinds, freezing mornings and road trains on narrow single-lane roads, 82-year-old Bob Montgomery and his 18-year-old gra...
29 July 2026

Thank You Deidree

We’d like to give a heartfelt thank you to Deidree Jones, who has been supporting MND NSW for over 25 years!Deidree has been a member of MND NSW since...
25 July 2026

82-year-old Grandfather And Grandson Pedal Towards Bowral Finish In Epic Ride For MND

Southern Highlands local Bob Montgomery, 82, and his grandson Tom Malcolm, 18, are closing in on the final stages of their epic 5,200 kilometre r...
24 July 2026

29km for 29 years of MND – Cynthia’s Story

For Cynthia Greentree, getting out and about during the week usually involves a good cause.Cynthia has lived with MND for 29 years, and this month she...
21 July 2026

Join the team: Carer Coordinator

We are seeking a professional to work with a committed workforce, responsible for providing ongoing support, information and education to people livin...
09 July 2026

Disability Pride Month: Include, Support, Respect

July is Disability Pride Month which celebrates the different ways people experience disability and promote awareness. The 2026 theme is “The World Wo...
09 July 2026

Top 5 Frequently Asked Questions from June 2026

A diagnosis of Motor Neurone Disease (MND) can raise many questions for the person receiving the diagnosed as well as their family, friends and suppor...
08 July 2026

Review: Craft and Connect Pilot Event for Past MND Carers

With thanks to funding from Ms Sharon Green & Mr Marcel Skjald, we designed an event for past MND carers and held a pilot on the Central Coast in...
02 July 2026

Recordings available: MND Special Interest Group Workshop 2026

We welcomed over 130 members of the MND community to the MND Special Interest Group Workshop on 19 June 2026 in Sydney. Recordings of the main present...
01 July 2026

Heartfelt stories shared by MND community members

Thank you to everyone who joined us at the Day of Hope and Remembrance, 27 June 2026. Together we joined in solidarity for people living with MND and...
30 June 2026

The Power of Stories

Daisy Kitts, MND Advisor at MND NSW, gave this beautiful speech at our 2026 Day of Hope and Remembrance. We're thankful for the dedication she an...
29 June 2026

Andrew Barrett Memorial Hunter MND Ball 2026

We'd like to say a big thank you to the organisers, attendees and supporters of the 2026 Andrew Barrett Memorial Hunter MND Ball. The event was h...