MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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What a great morning on Sunday 15 May at Meldrum Park, Ballina for our first Walk to d'Feet MND northern region. A beautiful venue, fabulous weather and a lovely walk. Thank you Ballina for your wonderful support. Thanks also to Kim Gussy our volunteer local coordinator and thanks also to her very talented son, Jase, for his wonderful music. 

MND NSW board member Anita Richter writes: My commitment to the MND community began in 1997. Through my work as a speech pathologist in both rehabilitation and palliative care settings I treated several people living with MND. I became concerned about the lack of real support services available as they and their loved ones strove to manage the challenges of this disease.

With a desire to make a difference I took the new position of Care Development Officer for MND NSW with the initial task of conducting a ‘Needs Assessment’ for People with MND.

MND Week has come and gone for another 12 months, but what an amazing Week it was. Thank you to all of our wonderful volunteers across NSW and the ACT who worked tirelessly to raise awareness and funds for motor neurone disease. We don’t have a confirmed total yet, with lots of workplace fundraising still to come in, although we do know we have raised over $28,000 already.

Australia's MND March of Faces Banners are a photographic display of people with motor neurone disease. The MND NSW March of Faces banners are displayed at various MND awareness raising and remembrance events throughout the year. Our MND March of Faces Banner 17 was displayed for the first time during MND Week 2016.

Over the last 12 months a few very good friends of David Pawson lost loved ones to MND... a disease he had never heard of. Some of the stories they shared with him moved David to the point of trying to figure out how he could 'make a difference'.  David took on a personal challenge, his first Ironman event, and raised funds for MND. On Sunday 1 May David and his two friends, Jason and Stephen competed in the Port Macquarie 70.3 Ironman and made it! Thanks David.

Get Involved

Some people like to help by volunteering to be involved in MND awareness-raising, fundraising or administration activities. Others help by organising community events to raise funds for MND care, support and research. This section lists some ideas for your involvement.

Many people choose to support the work of MND NSW by making a tax-deductible donation, buying some MND NSW merchandise, sponsoring a participant in a community event, donating goods or services, or by remembering MND NSW in their Will. More information about getting involved.

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Do you have a great idea for an event or activity that will raise funds for motor neurone disease care, support or research?

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About us

What is MNDNSW and what do we do?


Find out more about MND

Resources for families and health professionals



Support our work. Buy MND NSW merchandise here.


Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.