Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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This program is designed to help support people with permanent disability to participate in community events and activities by making it easier for a companion to join them. The Companion Card program is a free not for profit program funded by the Government.

People living with MND are often faced with difficult decisions for managing their symptoms and maintaining their quality of life as the disease progresses.

Some of the options people are asked to consider are gastrostomy, genetic testing, assisted ventilation, communication equipment and advanced care planning.

The EMERALD trial is a double blind placebo clinical trial looking at the benefits of medicinal cannabis for MND. This is a study looking at the effects of a liquid form of medicinal cannabis in treating patients suffering with Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND).

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Lily’s Story 

When Lily’s Dad was diagnosed with Motor Neurone Disease in July last year, at first she thought he was going to say that he had cancer. Lily was preparing for that, as she’d already lost so many family members to cancer in recent years. 

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts.

You can help MND NSW continue supporting people with motor neurone disease by making a donation to our Winter Appeal here.

 

Elliot was diagnosed with MND at just 19 years of age. He was enjoying his first semester at university and working one day a week at a local financial advisory firm.

The early signs for Elliot that something was wrong were frightening.

Hammond Care have a range of cook books that provide nutritious and appealing meal ideas that cater to an array of dietary or swallowing needs. The books were written in collaboration with a chef, speech pathologist and palliative care specialist and aim to provide practical advice so food can remain a pleasure and a comfort.

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What is MND NSW and what do we do?

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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