Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Mother’s Day can be a particularly difficult time for many people. It’s a day that is often seen as a time to celebrate and spend time with loved ones, but it can also be yet another reminder of a loss, and this can trigger emotions of grief and sadness.

Do you have a family history of MND? Have you considered, or previously received, predictive genetic testing for MND?

You are invited to participate in a study that aims to understand the psychological impacts of familial MND and predictive genetic testing. 

State of Play - Webinar Series 2021

State of Play is a Webinar Series organised by MND Research Australia. It is dedicated to all members of the MND Community and aims to introduce the advancements of the research community in Australia.

MND Week is coming up soon - this year it will be held from May 2 to 8. 

It's a time to raise awareness of MND, and how it impacts the lives of those with the condition, as well as their families. MND NSW provides support to people with MND, and we need your help during MND Week to raise funds to continue providing the vital services and equipment that we do. 

Following the success of the health and wellbeing workshops held during Carers Week 2020, Carers NSW is inviting carers to join a range of self-care and wellbeing events in May 2021.

The research project, ALS Quest, is approaching its deadline on 28 May 2021. This study is looking for risk factors that might contribute to the development of motor neurone disease (MND) and is an online anonymous questionnaire which asks a series of questions that may provide clues as to what factors trigger MND in some people. 

The Mobility Parking Scheme provides special parking conditions and concessions to eligible people with a disability. All Australian states and territories participate in the Australian Disability Parking Scheme, so you can use a valid and current permit Australia-wide. 

The Ambulance Service of NSW has developed two types of care plans to help ambulance staff to make the best decisions in the event of an emergency. Ambulance Care Plans authorise paramedics to provide individually tailored treatment based on the directions documented in their plan by their health practitioner. 

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Couldn't get to Ask the Experts or the SIG workshop?

Catch up at the MND NSW YouTube Channel.

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About us

What is MND NSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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