Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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As 2021 is now well underway, it's a good time to start thinking about joining our information and support events. We have many online and face to face events planned for this year and this is an opportunity to connect with others and join our MND community. 

Have you ever wondered what goes on behind the scenes here to help support you, or perhaps you’ve donated and would like to know what you’ve helped to fund? Join us for our blog series, where we take a look at the support we provide to those of you living with MND, and the teams who help make it happen. Over the past couple of weeks, we’ve found out about the people who make FlexEquip and the services they provide happen.

We’d like to introduce you to the rest of our FlexEquip team – collectively they ensure equipment goes to those who need it, when they need it, and provide specialist information on equipment provision to people living with MND or other progressive conditions, as well as to their health professionals. Your donations are vital to ensuring they can continue supplying the equipment our 320+ participants need annually.

Have you ever wondered what goes on behind the scenes here to help support you, or perhaps you’ve donated and would like to know what you’ve helped to fund? Join us for our blog series, where we take a look at the support we provide to those of you living with MND, and the teams who help make it happen. Last week we found out about FlexEquip and the service and support they provide. This time we hear about the people who make FlexEquip and the services they provide happen.

Have you ever wondered what goes on behind the scenes here to help support you, or perhaps you’ve donated and would like to know what you’ve helped to fund? Join us for our blog series, where we take a look at the support we provide to those of you living with MND, and the teams who help make it happen. This week, we find out a little about our FlexEquip team. 

While there is still much to learn about motor neurone disease (MND), understanding of this complex condition is continually improving and there are many researchers using a variety of techniques to develop potential new treatments.

While caring for a loved one with MND can be very rewarding, it also involves many stressors. It can be difficult for carers to find time for themselves and since caregiving can be an ongoing challenge, the emotional impact can snowball over time. And so, it’s important to remember that carers also need to take time out to care for themselves so they can continue to provide the best care for others.

This year has already been a very challenging one with bushfires and the onging impact of the coronavirus, and as we are now coming into increasingly hotter and drier days, we thought it would be a good time to remind our community of some bushfire safety tips.

The Ambulance Service of NSW has developed two types of care plans to help ambulance staff to make the best decisions in the event of an emergency. Ambulance Care Plans authorise paramedics to provide individually tailored treatment based on the directions documented in their plan by their health practitioner. 

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About us

What is MND NSW and what do we do?

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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