MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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All MND NSW offices will be closed for Christmas from Friday 24 December and will reopen on Monday 10 January 2022.

During this time our phones and emails will not be monitored.

Around 10% of people diagnosed with MND have a ‘familial’ form of the condition; meaning there are two or more affected members within their family. Most people diagnosed with MND have what is called ‘sporadic’ MND, so although there may be a genetic element involved, other family members will not be affected.

Times of celebration and significant events, like Christmas, can be a particularly difficult time for many people. It’s a day that is often seen as a time to celebrate and spend time with loved ones, but it can also be yet another reminder of a loss, and this can trigger emotions of grief and sadness.

As several areas of Australia are currently facing restrictions due to community cases of coronavirus, now is a good time to ensure you have the latest information about how you can keep yourself and your family safe and to find out what support is available.

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.


Marjorie’s Story

Marjorie is a one-of-a-kind, very special person. She started MND NSW back in 1981 (then known as Amyotrophic Lateral Sclerosis Society of Australia) after her husband, Bill, was diagnosed with ALS, the most common form of motor neurone disease (MND).

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.