Your smart phone is ringing, you’ve been waiting for an important call but you can’t seem to find your handset. You start searching for it—in your handbag, around the house, did you leave it in the wardrobe?—only to have the caller hang up before you even swipe the screen, let alone have a chance to say ‘hello’. It’s a scenario we can all relate to. And for those whose movement has become affected by MND the challenge of answering the phone can become an immensely frustrating experience. Especially when waiting for medical updates and information or when you miss calls from loved ones. That’s why we recommend extending the ring time on your smartphone, so you have a lot more time to answer.

A colour run was organised by Tracy Anderson from Totally Tumbling and Tricks to raise funds for MND research. It was a fun, and messy, day out for eveyone who participated! Our thanks to Bronwyn Wood who attended on behalf of MND NSW. A big thank you to Tracy for all her work towards this event which raised $3,298 for MND research.

Thank you to Zara White who organised a High Tea event overlooking the stunning Moruya River in November. Zara is part of a craft group, and the event was held in memory of their dear friend Karen. The High Tea was a great success with over 50 guests attending and a fantastic $2,292 raised for MND NSW. Thank you to everyone who attended and supported this event!

Thank you to the staff from the Department of the Environment and Energy in Canberra for their continued support with an Ice Bucket Challenge event. The event, known as The Scott Lisle Memorial Ice Bucket Challenge, is now in its fifth year and is held in memory of a former colleague. A special thank you to the Department's 2019 Graduates who coordinated the event and to MND NSW Board Member, Amy Critchley who attended. This year's event was another success with $10,790 raised for MND. 

Subscribe to news and updates