News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Research Opportunity: Imaging Research Study in Neuromuscular Disorders
Want to help researchers better identify how neuromuscular disorders like MND affect the brain over time? Researchers from the University of Sy...
Top 5 Frequently Asked Questions from March 2026
The MND NSW InfoLine answers hundreds of questions from people living with MND as well as their families, carers, and health professionals. This blog...
A Letter from PJ Two - Adventuring to Albury
We're always excited to see our MND NSW Puppies go to good homes. So we were especially thrilled to receive this update on the latest adventures that...
Employment and MND
MND Victoria and MND Australia have recently released a series of three guides about employment and MND. The guides support early planning around empl...
Keynote Speaker Announcement: Professor Adam Walker
We are pleased to announce Professor Adam Walker as the keynote speaker - Day of Hope and Remembrance, 27 June 2026, Sydney. Professor Walker leads th...
Thank you Suzanne and Latitude One Anna Bay
We'd like to sincerely thank Suzanne Richardson and Latitude One Anna Bay for their recent fundraiser held in aid of MND NSW. They hosted a morning te...
Your Support in Action: Meet Annie from FlexEquip
Thanks to your generosity in supporting our 2025 Christmas Appeal, FlexEquip has grown — and with it, our ability to support people living with MND wh...
Community Fundraising Champions - Tony and Narelle Houlcroft and the Coastal Wayfarers
Tony Houlcroft has been an active supporter of MND NSW for the past few years, hosting a number of Community Fundraising events to raise important awa...
Muscle Weakness and Cramps in MND: Recognising Common Symptoms
What is Motor Neurone Disease (MND)? Motor neurone disease (MND) is a progressive neurological condition that affects the nerve cells controlling volu...
Why I Joined MND NSW — A Personal Reflection from MND NSW CEO Liam O'Meara
When I stepped into the role of CEO at MND NSW, it wasn’t just a professional decision. It was deeply personal — shaped by family, loss, and a belief...
My MND Story – Troy Berry
Troy Berry has lived with MND for the past 28 years, but hasn’t let the diagnosis stop him. He’s been reliant on a positive attitude and staying as ph...
Let’s Talk about Swallowing
Swallowing Awareness Day is held on 18 March 2026. It is a day dedicated to raising awareness about swallowing difficulties. Swallowing is something m...