A big thank you to the staff from the Department of the Environment and Energy in Canberra for the continued support with their Ice Bucket Challenge event. The event, known as The Scott Lisle Memorial Ice Bucket Challenge, is now in its fourth year and is held in memory of a former colleague. A special thank you to Tara McGowan and Phil Bates who coordinated the event which raised a fantastic $8,329. Pictured is Finn Pratt, Secretary of the Department of the Environment and Energy.

Can you help us make Cornflower Blue Day our biggest yet? We are looking for volunteers to assist at the following stations from 7am to 10.30am on Friday 10 May, selling MND NSW merchandise and collecting donations.

   * Central Station
   * Martin Place Station
   * Town Hall Station
   * Bondi Junction Station
   * Circular Quay Station

Contact Sarah at This email address is being protected from spambots. You need JavaScript enabled to view it. if you can help.

Congratulations to North Cronulla FUNKY who recently won Under 23 Men at the 2019 ASRL Open at Elouera Beach. Love your support guys.
Photograph credit to Malcolm Trees and Brendon Grant.

For many people living with MND, appropriate aged care and support which can and should be delivered within a person’s own home, is completely unavailable to them. Many more are struggling to even achieve a fundamental level of support. This is unacceptable. The current Royal Commission into Aged Care in Australia has primarily focussed on the experience of older Australians in residential settings. This only represents part of the substandard care older people are experiencing through our aged care system. Depriving someone of the right to remain living in their own home, simply because of an unavailability of in home care packages is also substandard care. Now is the time to add our voices to the discussion and provide a very clear message to the investigators and to the decision makers that people living with MND want, need and expect to access their care, their way in their own homes.You can make a submission or have your voice heard.

Exciting news! Run MND will have two venues this year, Sutherland and Central Coast. Both events will be held on the same day, Sunday 26 May. You can Run or Walk 10km or 5km at both venues. Sutherland will start from Don Lucas Reserve Cronulla and Central Coast will commence from Long Jetty Foreshore Reserve. Save the date! Registration for both events will open soon. Visit our Community Fundraising Events page for details https://www.mndnsw.asn.au/all-events/community-fundraising-events.html

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