Since 2001 the Illawarra Folk Festival has supported charities and non-profit organisations from their opening night concert. We were thrilled to be chosen as one of the charities to benefit from this years festival. Thank you to our wonderful volunteers who attended the event, and the Illawarra Folk Festival for supporting MND NSW.

Congratulations to Denise Morris and friends who recently held a sausage sizzle at Tuggeranong Bunnings raising $1234.55 to support people living with motor neurone disease. What a great effort, and under some very trying circumstances with a very hot day.

Australian media has recently reported on a poster presented at the 29th International Symposium on ALS/MND held in Glasgow in December that reported outcomes of a phase 1 Clinical Trial conducted in Australia. The phase 1 trial was designed to test the safety and dosage of the compound CuATSM and research funds donated to MND NSW have been part of the $1.2million invested in trials of copper ATSM through the MND Research Institute of Australia.

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