To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

 

A Message from Graham Opie, CEO

This year, we are marking 40 years since we first started as an organisation so it’s a very special time for all of us here at MND NSW.

This program is designed to help support people with permanent disability to participate in community events and activities by making it easier for a companion to join them. The Companion Card program is a free not for profit program funded by the Government.

The EMERALD trial is a double blind placebo clinical trial looking at the benefits of medicinal cannabis for MND. This is a study looking at the effects of a liquid form of medicinal cannabis in treating patients suffering with Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND).

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Lily’s Story 

When Lily’s Dad was diagnosed with Motor Neurone Disease in July last year, at first she thought he was going to say that he had cancer. Lily was preparing for that, as she’d already lost so many family members to cancer in recent years. 

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