April 2020

Online education and information sessions

So what is happening with education for people living with MND, their family and friends and for the service providers now that our face to face sessions are suspended?

With changing times we now have an opportunity to deliver our education programs in a different way and has opened the way for innovation in ensuring everyone still can access information when they want it. We are now working to have many of our education and carer programs available as on demand online versions.

Can you donate to our Winter Tax Appeal and help make sure someone with MND is able to have life enhancing equipment delivered right to their door?

You may have received our Winter Tax Appeal in the mail asking for your help so we can continue delivering life enhancing equipment directly to people living with MND. People like Liz* who rely on our FlexEquip service so she can spend as much time as possible with her loved ones.

Australia Moves for MND – Sign up and get movin’!

We know you’re missing our Walks (so are we!) and like most of us, maybe you need a little motivation to get moving—it’s why we’ve joined forces with the other state MND Associations to bring you a virtual challenge event for these crazy times we find ourselves in, Australia Moves for MND!

Want to be part of MND Week?

During MND Week (3^rd to 9^th May 2020), we’ll be posting images and thoughts from our incredible MND community. If we can’t get together physically, we can still celebrate, remember and share virtually the importance of this week to us all.

I am MND a poem by Kaitlin Ellis

If you don’t know me,

I’m nothing to you.

If you do know me,

I’m the equivalent of hell.

I’m known as the beast.