2018 and earlier

You can participate in this international study aiming to find out if there is a relationship between levels of stigma and levels of psychological distress experienced by individuals with a diagnosis of MND. Researcher Natalie Leigh from Clinical Psychology programme at Lancaster University, Lancaster, United Kingdom, is seeking participants for her research. Anyone aged 18 or over who has a diagnosis of MND can complete an online survey regarding their experiences of stigma and well-being. 

The MND NSW e-news October 2018 edition was emailed to members and subscribers on 8 October. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.

Thank you Wagga Wagga for a great night! This was our sixth Walk in Wagga Wagga and our first twilight Walk to d'Feet MND. The weather was perfect and so was the company. The Walk began at 5.30pm and participants walked around the very pretty Lake Albert. A big thank you to the amazing Pat O'Hara and her wonderful sidekick Denise Hart who have both worked so hard for the past six years organising this event. A special thank you also to the members of the Wagga Wagga Rotary for their continued support and their yummy sausage sizzle at the end of the Walk, and to our local sponsors Les Gray Plumbing and Pirtek Wagga Wagga, both these sponsors have been with us from the beginning. Thank you also to the wonderful local volunteers, without your assistance we couldn’t hold our Walks.

"I had a lot of difficulty in finding information. I also didn’t know what I didn’t know" Paul Watson, MND NSW Member, has been the driving force behind our latest online resource I have MND. Now What? and it is one of the many resources that your support has helped fund for all people living with MND. Thanks for your support!

Do you want to hear experts speak about MND and what’s new in MND research? We still have places available at our Ask the Experts Forum on 5 November at West Ryde. This forum is an opportunity for you and your family to bring your questions about MND and have them answered. There is no charge to attend but you do need to RSVP. Find out more here.