"I had a lot of difficulty in finding information. I also didn’t know what I didn’t know" Paul Watson, MND NSW Member, has been the driving force behind our latest online resource I have MND. Now What? and it is one of the many resources that your support has helped fund for all people living with MND. Thanks for your support!
I have MND. Now what?
Latest News

Join the team: Carer Coordinator
We are seeking a professional to work with a committed workforce, responsible for providing ongoing support, information and education to people livin...

Disability Pride Month: Include, Support, Respect
July is Disability Pride Month which celebrates the different ways people experience disability and promote awareness. The 2026 theme is “The World Wo...

Review: Craft and Connect Pilot Event for Past MND Carers
With thanks to funding from Ms Sharon Green & Mr Marcel Skjald, we designed an event for past MND carers and held a pilot on the Central Coast in...

Top 5 Frequently Asked Questions from June 2026
A diagnosis of Motor Neurone Disease (MND) can raise many questions for the person receiving the diagnosed as well as their family, friends and suppor...
“We can't do this alone. But together, we're unstoppable.”