Blog

Researchers are currently recruiting people from QLD, SA and WA who meet the criteria for enrolment in the Study to Evaluate Efficacy, Safety and Tolerability of CK-2127107 in Patients With Amyotrophic Lateral Sclerosis (ALS) (FORTITUDE-ALS) (Trial ID NCT03160898). This is a multi-centre Phase 2 clinical trial investigating the safety, tolerability and effectiveness of a drug called reldesemtiv (also known as CK-2127107) in people with MND. 

2018 has already seen many community events held across NSW and ACT. Special thanks must go to each and every organiser who gave so generously of their time to raise funds for MND NSW and awareness about MND. Thank you to the following supporters:

Another wonderful Walk to d'Feet MND completed, our first in Penrith and what a fantastic result. Over 400 participants and currently $30,514 raised. Thank you Penrith. What a lovely venue, fantastic atmosphere and a very enthusiastic crowd. A big thank you to Kath Cavanagh and Team Jean for their wonderful support for this event. Thanks to Rod, Murray and Milton for their great music, the Rotary Club of Penrith for the yummy food and Mel from Cafe2U for the amazing brews. Last but certainly not least a big thank you to our wonderful volunteers and to everyone who came and supported us today. See you next year, we will certainly be back.

A big thank you to the Rotaract Club of the Hunter who raised $6,500 for MND NSW at their Luskintryre Air Field Family Fun Day! After a lot of work by the Club the day was a great success with the highlight being Tiger Moth plane and helicopter joyride flights. The day also included stalls, kids activities, a bake sale and sausage sizzle. Thank you to everyone who attended and supported the event.

The K-Farm Family Fundraising Weekend in Singleton was held during April with a fantastic $4,166 raised for MND NSW. A big thank you to Nigel and Cynthia Korff, and everyone who assisted in organising the event. It was a very successful and enjoyable weekend. Thank you to everyone who attended and gave so generously.