Researchers at the University of Canberra are looking to explore the connection between patient-caregiving relationships, chronic/complex illnesses and caregiver wellbeing. They are seeking adults who provide informal care for another adult with a chronic or complex health condition, including motor neurone disease. The study involves participants completing an online survey, which should only take 10 minutes of your time. You can access the survey directly at https://canberrahealth.az1.qualtrics.com/jfe/form/SV_26otrv1xNmhhL6d or for more information contact PhD student, Kath Carleton
This project has received approval from the University of Canberra’s Human Research Ethics Committee (HREC 0389).
Latest News
QALSODY (tofersen) Listed on the PBS
MND NSW and MND Australia have joined FightMND in welcoming the Australian Government's decision to list QALSODY (tofersen) on the Pharmaceutical Bene...
Thank You to Yarralumla Uniting Church
We'd like to say a big thank you to Bronwyn Hendy and the Yarralumla Uniting Church (YUC) for their Hymnfest and Afternoon Tea for MND fundraiser...
MND Care Practices in Australia: Healthcare Survey
Healthcare professionals who currently provide, or have recently provided, care for people living with MND are invited to take part in a short survey...
MND is a Notifiable Disease in NSW - What Does it Mean for You?
On 1 September 2026, motor neurone disease officially became a notifiable disease in NSW, making it the very first jurisdiction in Australia to report...