News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Meet our FlexEquip Team - Nicole Smith
Our FlexEquip Team are here to help you get the equipment you need. In this blog series, we'd like to introduce you to some of our team members, findi...
Volunteer Spotlight - Meet Zakhia
Since 2006, Zakhia Aoun has been volunteering for MND NSW in many different ways. A familiar face at our Walk to d’Feet MND events, she has assisted w...
Dementia Action Week: Cognitive and Behavioural Change in MND
Dementia action week is from Monday 18 September to 24 September 2023, with world Alzheimer’s Day on Thursday 21 September. MND can cause changes to c...
Do you have an MND gene mutation, but not MND? Join the MND Genies
The MND Genies is a closed Facebook group for people who have tested positive for a MND gene mutation but do not have MND. The informal support group...
New Podcast Episode: Flying high
Sarah El-Wahsh grows up in Kuwait and wants to become a pilot, but then she decides to become a speech pathologist. Find out what a speechy does and h...
The Info Line Top-5 Frequently Asked Questions from August 2023
August was another busy month for the team at the MND NSW Info Line. We responded to 85 enquires that we received via 1800 777 175 and our email infol...
New podcast episode: I'm a young carer, but hey
Lauren is 17 when she wins the design competition for the national MND Youth Hub. A cup of oatmeal in the morning symbolises her beautiful relationshi...
Communicating for life: Communication aids and equipment
This Speech Pathology Week we are taking part in promoting the important work of Speech Pathologists in supporting quality of life for the 1.2 million...
National Science Week: Ways to Participate in MND Research
Established in 1997, National Science Week provides an opportunity to acknowledge the contributions of Australian scientists to the world of knowledge...
Put the D-Word Back on the Table and Get Dead Set this Dying to Know Day, 8 August 2023
Let’s put the D-word back on the table. Have a chat, make a plan and Get Dead Set this Dying to Know Day. The D-word, death, for many of us, is confro...
The Taxi Transport Subsidy Scheme and Accessible Taxis
The taxi transport subsidy scheme (TTSS) supports residents who are unable to use public transport because of their disability. If you’re eligible, yo...
New podcast episode: The way my mother was
Sue Fower is on a trip of a lifetime. When her group reaches Iran, she receives a letter from her mother, warning her that she will be in for a shock...