News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Top-5 Frequently Asked Questions: April 2024
Hot topics in April at the MND info line included, preparing for a power outage, types of ventilation, managing fatigue and more. We have chosen the t...
Insights into the 2023 Global Fundamental Rights Survey
The International Alliance of ALS/MND Associations have released insights from the 2023 Global Fundamental Rights Survey. These rights represent the g...
Our Delivery Van has Arrived!
MND NSW has generously been supplied a delivery van, which will help us get vital assistive equipment to people living with MND as quickly as possible...
Volunteer Spotlight - meet Susan
Since 2018, Susan Allaburton has been volunteering for MND NSW, volunteering at Walk to Defeat MND events and selling merchandise. She began volunteer...
Top-5 Frequently Asked Questions from March 2024
Another month of 2024 has come and gone. We’ve collected the top-5 questions that were sent into the Info line last month. 1. How do you manage thick...
Prevent falls at home: Equipment and tips
It’s April Falls Month and what better way to raise awareness about falls prevention than to share with you some of the equipment available for hire f...
Give yourself piece of mind: Share what matters most this National Advance Care Planning Week
Advance care planning is important for everyone and is about sharing what matters to you and making your future wishes known. Discussing and documenti...
Free Food Mould for Swallowing Awareness Day 2024
Swallowing Awareness Day is on 13 March 2024. To help raise awareness about how swallowing issues impact people living with MND we are giving away a f...
Top-5 Frequently Asked Questions from February 2024
Enquiries through the info line phone and email were up around 15% in February as compared to January (which we thought was a very busy start to the y...
Charles Cutajar
Charles Cutajar was a man of many talents. He was strong, active, and could build or create almost anything you could dream of- whether it was a home,...
Join our Carers Kitchen Table Conversations
Are you a carer for a person living with MND? We have support groups for carers - our Carers Kitchen Table Conversations sessions are available...
Ward's Marathon for MND
Ward Sheehan has spent the past year running to raise awareness and much-needed funds to support people living with motor neurone disease – and on Mar...