MND NSW

www.mndcare.net.au is a new ‘one-stop shop' website about motor neurone disease for primary, allied, palliative, aged, disability and community care professionals. MNDcare gives access to latest evidence based and best practice MND symptom management and support information as soon as a need arises. The website includes state specific referral pathways to assist in identifying health professionals and services to meet the identified needs of patients with MND. The aim of the website is to facilitate and promote best practice coordinated, multidisciplinary MND care for all people with a diagnosis of MND in Australia especially in regional, rural and remote areas.

Everyone likes to have their opinions heard and be provided with an opportunity to voice their views. This study is inviting you to do just that. To say what you want, how you like, in the manner most suitable, and most importantly - it's all about you!

Amanda Dean is looking for people with motor neurone disease to participate in her PhD project to voice their views on the disease. This project plans to develop a new understanding of how people living with MND can maintain or increase health related quality of life, including for those who will be affected in the future.