Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Motor neurone disease has touched the lives of many families. Karalee Baker has a history of MND in her family, with her maternal great grandmother, maternal grandmother and father dying from MND. Karalee’s mother was also diagnosed with MND in 2014. With a history of MND on both sides of their family, Karalee and her siblings have a higher chance of being diagnosed with the disease sometime in their lives.

Karalee is determined to raise awareness of MND and raise funds for answers into the disease. She will run 45 kilometres from Queanbeyan to Gundaroo on the day of the Gundaroo Music Festival, 8 October 2016, and is expected to arrive at at Gundaroo around 2pm. A fundraising page has been set up to give us all the opportunity to donate to the cause.

We wish Karalee the very best in her journey, and urge you to dig deep and support her quest to raise funds for MND research.

To learn more about Karalee’s journey, and donate, head to https://mndspirit.everydayhero.com/au/karalee

About 27 people living with MND, their family and friends attend the MND NSW Living Well with MND day at the Wyong Race Club on 21 July. Thank you to the wonderful speakers including the CORT team occupational therapist, speech pathologist, physiotherapist and dietitian and Dr Anna Shutz, a neurologist from Gosford Hospital and Dr Ranjeev Ratnavadivel, a respiratory physician also from Gosford Hospital. Thanks so much for giving us your time and sharing your knowledge and expertise about MND and how to live better for longer. It really was a very informative day. Thanks also to Interrelate on the Central Coast and to Jan who spoke about strengthening relationships and the challenges for not only the person living with MND but also for the person who travels the journey with them.

A big thank you to Order of Saint John of Jerusalem, Knights of Malta who donated $15,000 to purchase a glide centro power wheelchair with roho cushion. What an amazing gesture. This is a much requested item from our FlexEquip Equipment Service.

Thank you to Team ReJoyce for another great fundraiser for MND NSW held recently at the Robertson Inn. More than 100 people attended a wonderful dinner with some great music by ‘Scared Stiff’ raising over $5,000.

Get Involved

Some people like to help by volunteering to be involved in MND awareness-raising, fundraising or administration activities. Others help by organising community events to raise funds for MND care, support and research. This section lists some ideas for your involvement.

Many people choose to support the work of MND NSW by making a tax-deductible donation, buying some MND NSW merchandise, sponsoring a participant in a community event, donating goods or services, or by remembering MND NSW in their Will. More information about getting involved.

Got an
idea?

Do you have a great idea for an event or activity that will raise funds for motor neurone disease care, support or research?

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About us

What is MNDNSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Support our work. Buy MND NSW merchandise here.

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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