Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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This event is conducted by the Independent Living Centre NSW - Client Services Team.The Independent Living Centre NSW (ILCNSW) is visiting Lithgow on 23 June as part of 'Assistive Technology on Tour'. The session is FREE and people with disabilities, consumers, carers and family members can get information on:

ALS Untangled is an international network of physicians and researchers investigating alternative and off‐label treatments for ALS/MND. People with motor neurone People with motor neurone disease (known as amyotrophic lateral sclerosis or ALS in some parts of the world) often consider alternative treatments, based on information gleaned from the internet. These can be expensive and some are potentially harmful. Moreover, the evidence presented for the efficacy and safety of these treatments is often sketchy and frequently inaccurate.

Run by the Australian Government, NDIS information sessions are designed to help people with a disability, as well as their families and carers, get ready for the National Disability Insurance Scheme that will commence in half of New South Wales on 1 July 2016. Information sessions are scheduled from time to time is various areas of NSW. New sessions have recently been scheduled for June in the Blacktown, Dee Why, Hornsby, Nepean and Blue Mountains areas.

What a great morning on Sunday 15 May at Meldrum Park, Ballina for our first Walk to d'Feet MND northern region. A beautiful venue, fabulous weather and a lovely walk. Thank you Ballina for your wonderful support. Thanks also to Kim Gussy our volunteer local coordinator and thanks also to her very talented son, Jase, for his wonderful music. 

MND NSW board member Anita Richter writes: My commitment to the MND community began in 1997. Through my work as a speech pathologist in both rehabilitation and palliative care settings I treated several people living with MND. I became concerned about the lack of real support services available as they and their loved ones strove to manage the challenges of this disease.

With a desire to make a difference I took the new position of Care Development Officer for MND NSW with the initial task of conducting a ‘Needs Assessment’ for People with MND.

Get Involved

Some people like to help by volunteering to be involved in MND awareness-raising, fundraising or administration activities. Others help by organising community events to raise funds for MND care, support and research. This section lists some ideas for your involvement.

Many people choose to support the work of MND NSW by making a tax-deductible donation, buying some MND NSW merchandise, sponsoring a participant in a community event, donating goods or services, or by remembering MND NSW in their Will. More information about getting involved.

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Do you have a great idea for an event or activity that will raise funds for motor neurone disease care, support or research?

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About us

What is MNDNSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Support our work. Buy MND NSW merchandise here.

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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