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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Ten national peak not-for-profit health organisations (making up the Neurological Alliance Australia (NAA)) are calling for the National Disability Insurance Scheme (NDIS) to transform the lives of over 850,000 Australians living with progressive neurological or neuromuscular conditions that have no known cause and no cure, outlined in a Joint Position Paper, People with progressive neurodegenerative diseases in the NDIS, launched 22 March 2017 at Parliament House Canberra.

The Carnarvon Golf Club in Lidcombe hosted a Charity Golf Day in March with $7,737.25 raised from the event donated to MND NSW. Despite the rain it was a fantastic day enjoyed by all who attended. Thank you to the organisers, the many sponsors, the Carnarvon Golf Club and everyone who attended and provided their support. Special thanks to Sharon Honeybrook and Kathy Knevitt (pictured) for their generosity of their time and talent.

After heavy rain all night, we prepared ourselves for the worst, but Mother Nature was kind to us with the early morning dawning bright and dry. This was the fourth Walk to d’Feet MND held in the Illawarra and the Illawarra showed up in their hundreds, lots of smiling faces and panting puppies. Our Walk to d’Feet MND events attract some large family groups and the Illawarra Walk was no exception, with groups of 25 and 30 people there to show their support for people living with MND, or to remember a loved one who has died from MND. Thank you to everyone

In a paper published online on 22 February in the Scientific Journal Neurology, MND researchers announced results of study (45 controls and 54 people with MND) evaluating whether a urine test for the protein 75ECD (p75ECD) could be used for prognostic and disease progression application.

The researchers, including Dr Mary-Louise Rogers from Flinders University, South Australia, found that urinary p75ECD did change over time, increasing as disease progresses and motor function declines, even for people with slowly progressive disease.

You can read the full paper free online here http:/​/​dx.​doi.​org/​10.​1212/​WNL.​0000000000003741

Every Australian Counts team will be hitting the road from March – May presenting NDIS information forums in NSW regional areas where the NDIS will be rolling out from July. Every Australian Counts is the campaign that brought about the introduction of the National Disability Insurance Scheme and now they are focused on engaging and educating the disability sector and wider Australian community about the benefits of the NDIS and the options and possibilities that it brings. At their NDIS Information Forums in regional areas of NSW in March, April and May 2017 they'll be covering

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