Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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A big thank you to Sophy Townsend who for the second year organised Run MND in support of individuals and families living with MND, and  for research. A group of 86 runners and walkers took part following the Sutherland 2 Surf route ending at Dunningham Park in Cronulla. The event raised $10,000 to support families with much needed equipment and support, as well as $10,000 for research. Thank you to everyone who participated and donated to this wonderful event! 

 

Researchers from the School of Behavioural, Cognitive and Social Sciences at the University of New England are investigating the role of psychological flexibility on understanding and acceptance of PEG tubes and non-invasive ventilation (using a BiPAP machine) in people with Motor Neurone Disease (MND/ALS). If you are aged 18 years or over and have been diagnosed with MND/ALS (regardless of whether you have opted for one of these interventions), you are invited to participate in this study.

From 1 July 2017, the National Disability Insurance Scheme (NDIS) will be in place across all of NSW, with people living in Northern NSW, Mid North Coast, Sydney, South Eastern Sydney, Illawarra Shoalhaven, Murrumbidgee, Western NSW and Far West NSW joining those already able to access the NDIS. Upcoming Community Information Sessions, Plan Implementation Workshops and drop-in sessions for NSW, the ACT and NT during May/June include:

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