Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Do you want to know what’s new in motor neurone disease research, current clinical trials and effective treatments for MND? Reserve your place at MND Connect, an interactive forum connecting people impacted by MND, with Australia's leading MND researchers. In 2017 this Forum will be held in New South Wales at the University of Sydney. People with a disability and their carers may reserve a disabled parking spot at the venue, or receive a wheelchair taxi voucher or subsidised travel from a regional area to attend this event. Find out more about MND Connect 2017 here.  

From 1 July, the Older Persons Advocacy Network (OPAN) has been engaged to provide free, confidential and independent advocacy support to older people who are receiving, or seeking to receive, Australian Government funded aged care services. see here for more information  The service focuses on supporting older people and their representatives to raise and address issues relating to accessing and interacting with Commonwealth funded aged care services. More info here http://www.opan.com.au/advocacy/

Are you one of the 46.000 Canberran’s who provides assistance to people living with disability, chronic health problems, mental health issues, are frail aged or are in foster or kinship care? If so then Carers ACT really want to hear from you about what would make Canberra a more carer friendly place that supports you and helps you to reach your goals.

People’s life experiences can tell a powerful story. This story can teach others about the meaning of these experiences, and how they affect a person’s life. Researcher Sarah Remm from the University of Wollongong is currently looking for people diagnosed with MND to share their story about their diagnosis experience. Your story will contribute to a study exploring diagnosis experiences of MND. Click here for more info.

Thank you to all of our supporters who ran in the City2Surf. Your support has raised $24,000. We hope you had a great day!

Pictured are three of the competitors from our City2Surf Superstars Team, Liz, Mary and Clare. Congratulations ladies and thanks again for your fantastic fundraising.

 

Are you caring for someone with MND in NSW? Talk-Link is a six-week telephone program for adult carers, facilitated by professional counsellors. Register your interest ASAP in the program to commence Tuesday 24 October 10-11am as places are limited. More info here

A big thank you to Sophy Townsend who for the second year organised Run MND in support of individuals and families living with MND, and  for research. A group of 86 runners and walkers took part following the Sutherland 2 Surf route ending at Dunningham Park in Cronulla. The event raised $10,000 to support families with much needed equipment and support, as well as $10,000 for research. Thank you to everyone who participated and donated to this wonderful event! 

 

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What is MND NSW and what do we do?

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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