MND NSW

 
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Welcome

The Motor Neurone Disease Association of NSW (MND NSW) is the only registered charitable not-for-profit organisation providing support and information for people with all types of motor neurone disease, their families and carers in NSW, ACT, the Gold Coast and NT through the MND NSW regional advisor service and MND InfoLine. MND NSW also provides equipment and advocacy for members with MND (membership is free), and runs information and education sessions about MND for families, carers and health and disability professionals. Welcome to the website of MND NSW.
 

Information evening for people recently diagnosed with MND, their family and friends

Information evenings for people who are newly diagnosed with motor neurone disease ensure that help is available at a time when many questions need to be answered.

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Your views about getting specialist multidisciplinary MND clinic advice at home via telehealth

The St Joseph's Auburn Multidisciplinary MND Clinic is currently inviting people living in NSW/ACT with motor neurone disease (MND), and people who care for people living with MND to participate in a study. They want to find out your views about getting specialist multidisciplinary MND clinic advice at home via telehealth.

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Assistive Technology on Tour - Dapto and Ryde

This event is conducted by the Independent Living Centre NSW - Client Services Team. The Independent Living Centre NSW (ILCNSW) is visiting Dapto in the Illawarra on 29 April and Ryde on 8 May as part of 'Assistive Technology on Tour'. The session is FREE and people with disabilities, consumers, carers and family members can get information on:

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Let’s make the system fair for all people with MND

On 1 July 2015 the Australian Government will release the latest Aged Care Reform to give older people more choice, more control and better access to a wider range of aged care services. The crucial issue is whether people with a disability over the pension age will have access to adequate supports to meet their individual needs. Ask the Government to end the inequity now.
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New scientific publication about gene variants linked to sporadic MND

A scientific paper published in the journal Scientific Reports reports that researchers have identified a new host of gene variants that could make people vulnerable to sporadic MND.

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MND Australia Research Update March 2015

This research update is produced by the MND Research Institute of Australia - the research arm of MND Australia. Read the latest MND research news.

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ALS Quest

You are invited to participate in a new research project that is looking for risk factors that might precipitate motor neurone disease (MND). An online anonymous questionnaire asks a series of questions about you that may give clues as to what factors trigger MND. All people are can now complete the questionnaire - people with the sporadic form of MND (that is, the type that does not affect other family members), people with familial MND, relatives and others without MND.

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March 2015 edition of Forum now online

You can access your March 2015 edition of Forum, the newsletter of MND NSW here
 

Nina Buscombe Award 2015 - call for applications

‘Nina's are awarded to celebrate the contribution and commitment demonstrated by Nina Buscombe to the improvement of services, management and research for people with motor neurone disease.

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Can you volunteer to help on 8 May 2015?

Cornflower Blue Day, the annual MND fundraising festival of puppies, wristbands, pens and blue t-shirts is coming to your nearest train station on Friday 8 May. We are currently seeking volunteers to assist us in the staging of this event. We have openings in our teams at stations throughout Sydney's CBD and in suburban areas including Parramatta, Chatswood, Sutherland and Penrith. Shifts of only a few hours are available. For more information please contact Susan, Volunteer Coordinator MND Week at This e-mail address is being protected from spambots, you need JavaScript enabled to view it
 

Entertainment Book 2015-16

Entertainment Books are a great way to save money while enjoying a night out or a day with the family.  20% of every membership sold on the Entertainment Book Motor Neurone Disease Association of NSW link below is contributed back to MND NSW.

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Talk-Link Grief and Loss by telephone

Carers NSW and Motor Neurone Disease Association of NSW have partnered to offer the Grief and Loss Talk-Link program to former carers of someone with MND. This is a six-week telephone program (1 hour per week), for adults, facilitated by professional counsellors. Registrations for the program commencing  28 April, close on 22 April ( (this program was previously scheduled to commence 21 April). Register early as places are limited. More information here
 

Donate your unwanted mobile phone

MND NSW has partnered with PhoneCycle as an easy, environmentally friendly way to fundraise! By donating unwanted phones you will be raising funds for Motor Neurone Disease Association of NSW while helping the environment.

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MND Aware free online training

MND Aware is a free web-based

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Motor Neurone Disease
Association of NSW
Building 4, Gladesville Hospital
Victoria Road, Gladesville NSW 2111

Ph. 02 8877 0999 or
Freecall NSW ACT NT
1800 777 175

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