If you, a member of your family or a friend has recently been diagnosed with motor neurone disease it is likely that you are experiencing many confusing and confronting emotions. You may also be feeling overwhelmed by too much information or worried that you do not have enough information. This section has some ideas for people recently diagnosed with MND.

Talk to a person who knows about motor neurone disease

Do you have a question about motor neurone disease? Have you just found out that a friend or colleague has motor neurone disease and you don't know what to say? Are you thinking about attending a motor neurone disease information session but want to find out more before you make the decision about going? Phone the MND Info Line.

Attend an information session about motor neurone disease

Attend an information session about motor neurone disease for people who have been recently diagnosed with motor neurone disease, their family and friends.

MND NSW Information evenings for people who are newly diagnosed with MND provide information about motor neurone disease and the opportunity for you to ask questions about the disease.

Find out about accessing services

You can get support from the MND Association, MND Clinics, government agencies, local healthcare services and community services. You can find out about services that may be available to you by contacting the MND Info Line. You may like to browse I have MND. Now What? which is a 15 page A4 quick reference list with online links to information, services and resources that may be of interest to people living with MND in NSW, the ACT and NT. Additionally you might like to browse the online MND NSW Directory of Services and Resources for people living with MND, which lists direct links to more than 200 services, programs, entitlements and resources that may be of interest.

Contact us and ask for an information pack to be posted to you

You can read the information pack when the time is right for you. Contact MND Info Line to request your pack.

See us on YouTube

Couldn't get to Ask the Experts or the SIG workshop?

Catch up at the MND NSW YouTube Channel.

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