Blog

For many people living with MND, appropriate aged care and support which can and should be delivered within a person’s own home, is completely unavailable to them. Many more are struggling to even achieve a fundamental level of support. This is unacceptable. The current Royal Commission into Aged Care in Australia has primarily focussed on the experience of older Australians in residential settings. This only represents part of the substandard care older people are experiencing through our aged care system. Depriving someone of the right to remain living in their own home, simply because of an unavailability of in home care packages is also substandard care. Now is the time to add our voices to the discussion and provide a very clear message to the investigators and to the decision makers that people living with MND want, need and expect to access their care, their way in their own homes.You can make a submission or have your voice heard.

Exciting news! Run MND will have two venues this year, Sutherland and Central Coast. Both events will be held on the same day, Sunday 26 May. You can Run or Walk 10km or 5km at both venues. Sutherland will start from Don Lucas Reserve Cronulla and Central Coast will commence from Long Jetty Foreshore Reserve. Save the date! Registration for both events will open soon. Visit our Community Fundraising Events page for details https://www.mndnsw.asn.au/all-events/community-fundraising-events.html

A big thank you and congratulations to Jess and friends who held an Australia Day Lemonade and Cookie Stall to raise funds for MND NSW. They raised over $900, what a great result!

We would like to invite all children attending our Walk to d'Feet MND events this year to bring along a drawing of the person they are walking in honour of. We will have a board available at each Walk to display the drawings. Come on kids get those crayons and pencils out and start drawing.

Find our Walk locations for 2019 at
https://www.mndnsw.asn.au/get-involved/walk-to-dfeet-mnd.html

Thank you to the wonderful support provided by the Rotary Club of Narrandera from their Christmas Party which raised $3,200 for research. Special thanks go to Joy and Robert Norrie together with Beth and Greg McVicker who organised and catered the event. Robert said of the evening, "We had a great night even though it was very hot, 36 degrees, until late. We had 98 people seated on our lawn beside the Murrumbidgee River. A chandelier hung in the overhead gum tree and as night settled in we were entertained by some of the Riverina Men’s Choir."