Blog

On Sunday 3 March 2019 Channel 10 The Project spoke with sisters Kaitlyn and Jessica Ellis about the impact of having an MND related genetic mutation, which increases the risk of later developing MND.

They also talked about MND Genies, the MND NSW closed Facebook group where people can connect and share their experiences.

You can watch online here (the interview starts at around 15mins into the program) until 3 June 2019. 

Find out more about MND Genies here https://www.mndnsw.asn.au/what-we-do/groups/1299-mnd-genies.html

Thank you to the Tathra Beach Women’s Bowling Club who have made a donation to MND NSW on behalf of club member Anne Pearson's daughter, Louise Pearson, who has been living with MND for almost 12 years. Anne said of the donation, "As is in most bowling clubs, we have a jar in which members place a coin any time they put down a wrong bias, or use questionable language." Pictured is Louise Pearson, Anne Pearson and club president Judy Malone presenting the donation of $400 collected from the jar. Thank you ladies for the continued support.

This research update is produced by the MND Research Institute of Australia - the research arm of MND Australia. Read the latest MND research news.

The MND NSW e-news March 2019 edition was emailed to members and subscribers on 1 March. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.

A big thank you to the staff from the Department of the Environment and Energy in Canberra for the continued support with their Ice Bucket Challenge event. The event, known as The Scott Lisle Memorial Ice Bucket Challenge, is now in its fourth year and is held in memory of a former colleague. A special thank you to Tara McGowan and Phil Bates who coordinated the event which raised a fantastic $8,329. Pictured is Finn Pratt, Secretary of the Department of the Environment and Energy.