Youth Hub
The Youth Hub has resources about MND for young carers.
A young carer is a person between 5 and 24 years of age and who is connected to a person who is living with Motor Neurone Disease (MND). This may be a friend or family member.
Kids Pack and Booklet for ages 5-11
Contact your state MND association for the MND National Youth Hub Kids Pack and Booklet for ages 5-11 years.
View the booklet from the pack on screen here
‘Me, my family and MND’ is a guide for young people to help them understand MND and contains activities and information.
To request a hard copy of this booklet, please contact:
(c) MND NSW 2023
Talking with Young People about MND
Information pack of six booklets (of 8 to 20 pages each) for parents making the difficult journey with motor neurone disease. 
Includes one booklet for parents with suggestions and tips, and five other booklets.
- free online
- hardcopy available - free for members, families and carers in NSW,ACT andNT.
Contents include:
(c) MND Vic and MND NSW published June 2008
I'm a young carer, but hey - Lauren
Lauren's entry below won our Youth Week Design Contest 2023. Lauren created her design traditionally with ink on paper, scanned it, and coloured it digitally. Lauren allowed us to also share the beautiful story that came with her design via email.
I designed my logo hoping to capture a common experience for most young carers of MND patients. As a young carer myself, I started by reflecting on the time spent with my father every morning preparing breakfast for us. It's a small moment of peace that I treasure deeply, before even thinking about the stressful day ahead! I feel that a morning cup of coffee is something that every young carer has made at some point for their loved one, and I hoped to capture the meaning it holds as a little bit of hope for people affected by MND.
Kids Helpline
The Kids Help Line is a private and confidential telephone and online counselling service dedicated to help children and young adults. You can speak with Kidsline about carer stress, or other issues ranging from relationship breakdown and bullying to sexual abuse, homelessness, suicidal thoughts, depression and drug and alcohol usage. The helpline service receives more than one million calls per year. Kids Helpline is available 24/7 every day of the year.
Phone: 1800 55 1800
Email counselling:
Web Chat: https://kidshelpline.com.au/get-help/webchat-counselling
Kids and grief
There is help out there for children and adults who experience grief and loss. Take a look at this one for young people between 6 and 18, and speak to your parents if you think this (or another program) is for you.
Seasons for growth is “a program that strengthens the emotional and mental wellbeing of children and young people who are adapting to experiences of change, loss and grief in their lives.”
Children & young people | The MacKillop Institute
Carers Australia - Young carers
There are programs available to support young carers including respite services, referrals and information, and counselling. For more information visit the young carers page of the Carers Australia website.
The National Centre for Childhood Grief (NCCG) is a service that provides specialist grief and bereavement counselling to children and families impacted by MND. Services include child and adult counselling, kids groups, adventure camps, parent and caregiver support groups as well as education courses and resources.
The NCCG can support children aged 3-17 who are impacted by MND from the point of MND diagnosis and through to bereavement care.
Contact your MND Advisor to support with referral or you can self-refer at