Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Carer Gateway helps carers. Carer Gateway is an Australian Government initiative for anyone who is an unpaid carer.

If you care for a family member or friend, then Carer Gateway could help you.

The COVID-19 pandemic has literally disrupted every aspect of life, including how we grieve.

Researchers at the University of Technology Sydney invite you to take part in a research study that explores the experiences and support needs of people bereaved from any cause during the COVID-19 pandemic.

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Margaret’s Story

Margaret has been volunteering with MND NSW for just over 18 years.

In September of 2002, her husband was diagnosed with MND. At first she thought she would have at least a few more years with him but his illness progressed quickly.

The taxi transport subsidy scheme (TTSS) supports residents who are unable to use public transport because of a severe and permanent disability.

If you're eligible, you could receive a subsidy of 50% of a taxi fare, up to a maximum subsidy of $60 and only pay the remaining fare. This includes travel in wheelchair accessible taxis.

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Dianne’s Story 

In April 2020, the global pandemic had just hit and in the middle of a global lockdown, Dianne’s twin brother Paul was diagnosed with MND. The whole family was devastated.

As several areas of Australia are currently facing restrictions due to community cases of coronavirus, now is a good time to ensure you have the latest information about how you can keep yourself and your family safe and to find out what support is available.

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What is MND NSW and what do we do?

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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