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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Australian media has recently reported on a poster presented at the 29th International Symposium on ALS/MND held in Glasgow in December that reported outcomes of a phase 1 Clinical Trial conducted in Australia. The phase 1 trial was designed to test the safety and dosage of the compound CuATSM and research funds donated to MND NSW have been part of the $1.2million invested in trials of copper ATSM through the MND Research Institute of Australia.

MND Connect brought together the community, researchers and clinicians in an interactive forum to discuss MND research. The presentations can be viewed by following the link below. The 4th annual MND Connect meeting was held in Melbourne on 10 November and showcased the remarkable MND research currently being undertaken in Australia. People living with MND were invited to attend, along with friends, family, researchers and health professionals from the broader MND community. Ron Grima, who is living with MND, attended the conference with his wife, Debbie. Ron provided MND Australia with the following report.

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