It is Feeding Tube Awarness Week: 4-10 February 2024.
We take part in raising awareness about feeding tubes because for many people with MND, a feeding tube is an opportunity to live better for longer.
MND can cause saliva management issues and weakness in the muscles around the throat, tongue and mouth making it hard to swallow and chew. A feeding tube can enable people to keep hydrated, take medications and maintain weight.
A tube is inserted into the stomach, it is small and discrete and can be covered with clothing. Some people with MND choose to have a feeding tube inserted early and before they experience changes to their speech and swallow. For people with respiratory changes, considering a feeding tube early is recommended as there can be complications with the procedure when respiratory function falls below a certain level.
A feeding tube can be used to meet your needs. Some people continue to eat and drink what they enjoy and take additional supplements or medications through the tube. You can continue to eat and drink as usual with a feeding tube.
A feeding tube, also known as a Percutaneous Endoscopic Gastrostomy (PEG) or Radiologically Inserted Gastrostomy (RIG), can be recommended by a Gastroenterologist. A referral to a Gastroenterologist is required from your GP.
Discuss a feeding tube with your GP and respiratory specialist.
Further information:
- Information about Feeding Tube Awareness Week 4-10 February 2024.
- Considering gastrostomy: PEG &RIG factsheet
- Information about MND and Eating, Drinking and Swallowing on MND Connect.
- myTube – videos and information from people living with MND about decision making, fitting, living and caring for a feeding tube.