In the past year we have worked hard to support our members in achieving key communications needs. We have helped them with the communications challenges presented by daily life. We have reorganised and augmented our team to facilitate the individualised pre-planning and third-party communications necessary to help members aged under 65 years make the most of their NDIS plans. We have continued to work on communicating our cause to the public in order to fund research that will lead to a cure. Read more about our work in the MND NSW Annual Review 2017.
MND NSW in the communications age

Latest News

Congratulations to all 2026 NSW Volunteer of the Year Nominees
We love to celebrate how special our volunteers are, and the amazing work they do for us! After being nominated for 2026 NSW Volunteer of the Year awa...

Calls for Urgent Action on Aged Care Assessment Tool
MND NSW supports MND Australia's calls for greater transparency about the outcome of the Government’s review of the Integrated Assessment Tool (I...

QALSODY (tofersen) Listed on the PBS
MND NSW and MND Australia have joined FightMND in welcoming the Australian Government's decision to list QALSODY (tofersen) on the Pharmaceutical Bene...

Top 5 Frequently Asked Questions from August 2026
A diagnosis of Motor Neurone Disease (MND) can raise many questions for the person receiving the diagnosis as well as their family, friends and suppor...
“We can't do this alone. But together, we're unstoppable.”