MND impacts the lives of many – the person with MND, and their family and friends. Today we are posting a survey to the family carer of MND NSW members who died from MND in 2016, 2017 and 2018. The survey is part of a research study being conducted by La Trobe University which hopes to gain insight into the experiences of family carers whose family member died from MND between 2016-2018. This valuable information will help us to better understand the needs of carers. We encourage you to participate if you receive a survey in the post by completing and returning the survey in the reply paid envelope provided by 5 June. Alternatively you can complete the survey online at https://is.gd/mndbereavementsupport. If you prefer a paper copy and you have not received one in the post by 23 May, please let us know. If you have any questions regarding the study, please contact Leanne Jiang on
Survey for family carers whose family member died from MND between 2016-2018
Latest News
Every Moment Matters - Evaluating the Impact of MND
Being diagnosed with MND brings changes, challenges and extra considerations for a person living with the condition, as well as to their carers a...
Getting Prepared for Holiday Period - Things to Think About as MND Carers
The traditional festive season is upon us…putting up Christmas trees and decorations, pondering presents to give to others, planning for celebrations,...
MND NSW Privacy Policy
We have reviewed the MND NSW Privacy Policy, in accordance with legislative responsibilities. If you would like to review our Privacy Policy you can r...
Your Opinion Matters: Ways to Shape the Future of MND
At any given time, there are a number of ways to get involved and have your say about matters that are important to you. Such as, disability supports...