Since 2001 the Illawarra Folk Festival has supported charities and non-profit organisations from their opening night concert. We were thrilled to be chosen as one of the charities to benefit from this years festival. Thank you to our wonderful volunteers who attended the event, and the Illawarra Folk Festival for supporting MND NSW.
Illawarra Folk Festival

Latest News

QALSODY (tofersen) Listed on the PBS
MND NSW and MND Australia have joined FightMND in welcoming the Australian Government's decision to list QALSODY (tofersen) on the Pharmaceutical Bene...

Thank You to Yarralumla Uniting Church
We'd like to say a big thank you to Bronwyn Hendy and the Yarralumla Uniting Church (YUC) for their Hymnfest and Afternoon Tea for MND fundraiser...

MND Care Practices in Australia: Healthcare Survey
Healthcare professionals who currently provide, or have recently provided, care for people living with MND are invited to take part in a short survey...

MND is a Notifiable Disease in NSW - What Does it Mean for You?
On 1 September 2026, motor neurone disease officially became a notifiable disease in NSW, making it the very first jurisdiction in Australia to report...
“We can't do this alone. But together, we're unstoppable.”