News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Community Fundraising Champions - Tony and Narelle Houlcroft and the Coastal Wayfarers
Tony Houlcroft has been an active supporter of MND NSW for the past few years, hosting a number of Community Fundraising events to raise important awa...
Muscle Weakness and Cramps in MND: Recognising Common Symptoms
What is Motor Neurone Disease (MND)? Motor neurone disease (MND) is a progressive neurological condition that affects the nerve cells controlling volu...
Why I Joined MND NSW — A Personal Reflection from MND NSW CEO Liam O'Meara
When I stepped into the role of CEO at MND NSW, it wasn’t just a professional decision. It was deeply personal — shaped by family, loss, and a belief...
My MND Story – Troy Berry
Troy Berry has lived with MND for the past 28 years, but hasn’t let the diagnosis stop him. He’s been reliant on a positive attitude and staying as ph...
Let’s Talk about Swallowing
Swallowing Awareness Day is held on 18 March 2026. It is a day dedicated to raising awareness about swallowing difficulties. Swallowing is something m...
Start the Conversation this National Advance Care Planning Week 16-22 March 2026
The theme for this year’s National Care Planning Week is ‘Your story, your choice’ and is a good reminder to pause and think about what matters most....
Top 5 Frequently Asked Questions from February 2026
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top five questions we’ve been asked lately from across NSW, ACT an...
A Journey Shared: Mateship, Malaya and Me
John Meldrum has authored ‘A Journey Shared: Mateship, Malaya and Me’, with proceeds from the sale of the book being donated to MND NSW. His book is a...
Volunteer Spotlight - meet Trish
Trish Carling has been a familiar face at our ACT Support Group meetings for over a year now. She began volunteering for MND NSW in 2024, keen to supp...
Let's Party Merriwa
In January, Leanne Hook and the Merriwa and District Chamber of Commerce and Industry Incorporated held the ‘Let’s Party’ event in support of MND NSW....
What you told us about our strengths and opportunities for improvement
In late 2025 we gathered feedback from people accessing our services via an online survey. Your feedback highlights both our strengths as well as some...
Top 5 Frequently Asked Questions from January 2026
Receiving a diagnosis of Motor Neurone Disease (MND), supporting someone living with MND, or caring for a loved one can raise many questions. Here are...