News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Keynote Speaker Announcement: Professor Adam Walker
We are pleased to announce Professor Adam Walker as the keynote speaker - Day of Hope and Remembrance, 27 June 2026, Sydney. Professor Walker leads th...
Thank you Suzanne and Latitude One Anna Bay
We'd like to sincerely thank Suzanne Richardson and Latitude One Anna Bay for their recent fundraiser held in aid of MND NSW. They hosted a morning te...
Your Support in Action: Meet Annie from FlexEquip
Thanks to your generosity in supporting our 2025 Christmas Appeal, FlexEquip has grown — and with it, our ability to support people living with MND wh...
Community Fundraising Champions - Tony and Narelle Houlcroft and the Coastal Wayfarers
Tony Houlcroft has been an active supporter of MND NSW for the past few years, hosting a number of Community Fundraising events to raise important awa...
Muscle Weakness and Cramps in MND: Recognising Common Symptoms
What is Motor Neurone Disease (MND)? Motor neurone disease (MND) is a progressive neurological condition that affects the nerve cells controlling volu...
Why I Joined MND NSW — A Personal Reflection from MND NSW CEO Liam O'Meara
When I stepped into the role of CEO at MND NSW, it wasn’t just a professional decision. It was deeply personal — shaped by family, loss, and a belief...
My MND Story – Troy Berry
Troy Berry has lived with MND for the past 28 years, but hasn’t let the diagnosis stop him. He’s been reliant on a positive attitude and staying as ph...
Let’s Talk about Swallowing
Swallowing Awareness Day is held on 18 March 2026. It is a day dedicated to raising awareness about swallowing difficulties. Swallowing is something m...
Start the Conversation this National Advance Care Planning Week 16-22 March 2026
The theme for this year’s National Care Planning Week is ‘Your story, your choice’ and is a good reminder to pause and think about what matters most....
Top 5 Frequently Asked Questions from February 2026
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top five questions we’ve been asked lately from across NSW, ACT an...
A Journey Shared: Mateship, Malaya and Me
John Meldrum has authored ‘A Journey Shared: Mateship, Malaya and Me’, with proceeds from the sale of the book being donated to MND NSW. His book is a...
Volunteer Spotlight - meet Trish
Trish Carling has been a familiar face at our ACT Support Group meetings for over a year now. She began volunteering for MND NSW in 2024, keen to supp...