News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Peru Trek - Day 8
After our first night back in civilisation, it was a bit confusing to wake up in a bed, rather than a tent, and to use an ordinary toilet again! Anoth...
Peru Trek - Day 7
Rising at 5am at Phuyupatamarca, our campsite, we walked a short distance to watch the sun rise and colour the clouds above the mountains surrounding...
Edaravone update
Dr Brad Turner, The Florey Institute of Neuroscience and Mental Health Victoria and speaking with MND Victoria CEO, Rod Harris about the US announceme...
MND in the news in the Illawarra on 11 May
Don't miss this great interview on 9News Illawarra on 11 May featuring Paul Watson from the Illawarra and also Dr Justin Yerbury and Isabella Lam...
Peru Trek - Day 6
Rising at 4:30am, pitch black, the outside of our tents covered in a thin layer of ice... and knowing that today was to be the longest, the steepest,...
Peru Trek - Day 5
Today started with a cow, randomly running through our campsite; always gotta be on your toes around here! Once we were on the track and ready to trek...
Wesley Mission Carer Well-being workshops - Broadmeadow
Wesley Mission is conducting free carer wellbeing workshops in the Hunter at Broadmeadow in June. Carers attend two days from 9.30am to 2.30pm on...
Update on edaravone (Radicava)
More information on the drug edaravone (Radicava) recently approved by USA Food and Drug Administration (FDA) for the treatment of MND...
MND March of Faces Banners 18 and 19 now online
Australia's MND March of Faces Banners are a photographic display of people with motor neurone disease. The MND NSW March of Faces banners are display...
Peru Trek - Day 4
This morning we left Cusco city early, and the comfort of our hotel, flushing toilets and civilisation! After a windy, hilly drive, we stopped at a st...
The drug Radicava (edaravone) approved to treat ALS/MND in the USA
The U.S. Food and Drug Administration (FDA) has approved the drug Radicava (edaravone) to treat ALS/MND in the USA. Shown to slow progression in some...
Peru Trek - Day 3
Today we really got immersed into Inca heritage, starting with a visit to Awana Kanchu, ‘the weaving place’. Not only did we learn about the importanc...