Skip to main content

News

Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

Browse Stories

06 May 2021

Grief and significant events

Times of celebration and significant events, like Father's Day, can be a particularly difficult time for many people. It’s a day that is often seen as...
05 May 2021

Research study - Genetic testing for MND

Do you have a family history of MND? Have you considered, or previously received, predictive genetic testing for MND? You are invited to particip...
30 April 2021

Judy’s Story

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. You can he...
29 April 2021

Mother's Day Gift Ideas

Are you looking for the perfect gift to spoil your wonderful mum? We've got plenty of goodies to show her just how special she is! Photo frame - for a...
23 April 2021

MND Week 2021

MND Week is coming up soon - this year it will be held from May 2 to 8.  It's a time to raise awareness of MND, and how it impacts the lives of t...
13 April 2021

ALS Quest - last chance to be involved!

The research project, ALS Quest, is approaching its deadline on 28 May 2021. This study is looking for risk factors that might con...
01 April 2021

Easter treats

Dysphagia friendly chocolate ideas for Easter Special occasions like Easter can tend to focus on enjoying and sharing food with family and friends. Th...
30 March 2021

University of Newcastle study seeking participants who have MND and receive services under the NDIS

Are you someone with motor neurone disease, who lives in a rural location and receives services under the NDIS? Dr Luke Wakely from the University of...
23 March 2021

MND Australia - Research Update

March 2021 This research update is produced by MND Research Australia - the research arm of MND Australia. Read the latest MND research news.  {p...
19 March 2021

National Advance Care Planning Week

22- 26 March, 2021 National Advance Care Planning Week is an annual initiative by Advance Care Planning Australia that encourages all Austra...
19 March 2021

Meeting MND NSW – Our MND Advisor Team

We try our best to support you through every step of your MND journey, with vital donations ensuring we can keep providing equipment, support, educati...
16 March 2021

Disability Gateway

The Federal Government and Department of Social Services have developed and launched a new service for Australians living with disability. The Disabil...