Managing MND

15 page A4 quick reference list with online links to information, services and resources that may be of interest to people living with MND in NSW, the ACT and NT. 

48 page A4 book providing an overview of motor neurone disease and strategies for symptom management.

72 page A4 book providing strategies for living at home with MND, more in-depth information and day-to-day tips.

Online searchable directory providing contact details for more than 200 services and resources that may be of interest to people living with MND.

62 page booklet containing food and drink recipes for people with swallowing difficulties.

20 page booklet for carers providing information and strategies about managing the changes involved when a person is experiencing swallowing difficulties. Published by MND Victoria.

22 minute video or DVD providing information and strategies about managing the changes involved when a person is experiencing swallowing difficulties. Covers a wide range of management issues such as how carers can help, consistency of food and liquid, foods to avoid, eating and drinking styles, positions for eating and drinking, special utensils, and saliva problems. The information presented is not specific to the swallowing problems caused by motor neurone disease.

2 page fact sheet providing information about and strategies about planning ahead outlining arrangements you might consider setting in place including

• advance care planning - medical care and treatment
• appointing a substitute decision-maker - health care, lifestyle or finances
• making a Will - finances
• donating tissue

There are a number of applications (Apps) available for Apple iPads/iPhones (and some available for Android tablets) that may be helpful for a person with MND who has communication difficulties.