Quality accreditation
MND NSW is committed to providing you a quality service. We are accredited under the following quality accreditation schemes.
Welcome
MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.
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Get Involved
Some people like to help by volunteering to be involved in MND awareness-raising, fundraising or administration activities. Others help by…
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Need equipment?
FlexEquip, the MND NSW Equipment Service, provides equipment for people with rapidly progressive neurological conditions, including MND.
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Leadership
MND NSW is governed by the Board of Directors and managed by the Chief Executive Officer, Graham Opie.
History
Articles of interest related to the development of MND NSW. Contact us if you would like to contribute an article about the development of MND NSW.
Annual reviews
The MND NSW Annual Reviews provide an overview of the activities of MND NSW. For more information contact MND NSW.
Purpose
The Motor Neurone Disease Association of New South Wales is a registered charity.
Vice Patrons: Melinda Gainsford Taylor, Kevin Langdon OAM and Hon Mr Justice Peter W Young.
The purpose of Motor Neurone Disease New South Wales is given by the following Objects:
- To provide benefits for and services to members of the Association with motor neurone disease, their families and carers without discrimination.
- To distribute authoritative information and promotion of education to all people with motor neurone disease, their families, their carers, health professionals and the public.
- To promote public awareness of motor neurone disease.
- To assist by providing specialised equipment for patient use on a loan basis, where practicable.
- To facilitate the formation and operation of branches and support groups.
- To encourage and assist in the establishment of service organisations for patient treatment, support and care.
- To promote the study of and research into the causes, treatment and cure(s) of motor neurone disease.
- To encourage fundraising and to raise funds for allocation to research work by Motor Neurone Disease Research Australia, or other government recognised research organisations.
- To inform members and the public about research being undertaken in Australia and overseas.
- To promote, develop and accept membership into the Association from patients, their families, carers, health professionals, interested persons and the public.
- To hold social, educational and support meetings of members - such meetings not being general meetings.
- To promote co-operation among members and to represent their interests.
- To provide a caring link between patients in order to reduce the feeling of isolation.
- To co-operate with other self-help organisations and with other local, state, territory, national and international motor neurone disease Associations in the achievement of these Objects.
- To establish, maintain and extend a comprehensive library of motor neurone disease and other requisite works.
- To invest moneys of the Association not immediately required in approved interest bearing funds.
- To raise funds and to promote fundraising by branches and support groups for patient services.
- To do all other things as may be necessary to achieve the above mentioned Objects.
Corporate Supporters
Our corporate supporters provide ongoing financial and in-kind support to MND NSW.
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Upcoming Events
2025 Health Professional Webinar Bundle - 5 Webinars
27 Mar 2025
Health and community care professionals
27 Mar 2025
Health and community care professionals
Balancing Dignity of Risk and Ethical Decision-Making: Supporting client autonomy webinar
27 May 2025 2:00 pm
Health and community care professionals
27 May 2025 2:00 pm
Health and community care professionals
Visit Our Facebook Page
See us on YouTube
Catch up at the MND NSW YouTube Channel.
Including MND NSW in your Will
Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.
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