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Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

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12 October 2025

National Carers Week 2025

This National Carers Week, we're acknowledging the amazing carers in our community. We'd like to take a moment to appreciate you for the care, dedicat...
12 October 2025

Carers Week 2025 - Lynette's Story

For Lynette Price, being a carer of a loved one with MND is about making the most of their moments together. She and her husband care for her 1-year-o...
12 October 2025

Carers Week 2025 - Tony's Story

In 2021, Narelle Houlcroft was diagnosed with MND. Her husband Tony became her carer, as MND took more and more of her physical abilities and cha...
12 October 2025

Carers Week 2025 - Helen Jesudason

My husband Ratna was a healthy, strong, energetic and adventurous individual. It was a big shock to me and the children when he was diagnosed with MND...
12 October 2025

Carers Week 2025 - Anthea's Story

My name is Anthea and I’m a full-time carer for my husband Jason who was diagnosed with motor neurone disease eight years ago. MND is a progressive ne...
09 October 2025

Top 5 Frequently Asked Questions from September 2025

Welcome back to the Top 5 from MND NSW! Over the last month, the MND NSW Info Line has answered hundreds of questions from people living with Motor Ne...
09 October 2025

Celebrating the Important Role of Allied Health for People Living with MND

Although there is no cure for Motor Neurone Disease (MND), supportive interventions are available. Allied health professionals are critical in providi...
19 September 2025

Community Fundraising Champions - Des Hughes and Sylvia Lake

Des Hughes and Sylvia Lake are our latest Community Fundraising Champions, having held an Ice Bucket Challenge with the Central Coast Hash House...
05 September 2025

Christmas Collection Sneak Peek

Christmas Collection Sneak Peek Keen to get your Christmas shopping ticked off the to-do list? Take a sneak peak at our 2025 Christmas Collection and...
05 September 2025

MND NSW Spring Collection 2025

MND NSW Spring Collection 2025 Spring has sprung! Now is the perfect time to embrace the warmer weather with new fitness gear, keep yourself hydrated,...
04 September 2025

Practical support and tips for MND/FTD carers

According to a recent report released by MND Australia, MND carers experience many emotions and are constantly adjusting to the various demands of the...
02 September 2025

Dementia Action Week: Understanding and Supporting People with MND/FTD

15-21 September 2025 is Dementia Action Week. It is an important time to raise awareness about the different ways dementia can affect people, includin...