About one out of every ten people with MND will receive a diagnosis of ‘motor neurone disease with frontotemporal dementia' or MND/FTD. Often the symptoms of dementia precede the motor symptoms, sometimes by a number of years. The 11th International Conference on Frontotemporal Dementias (ICFTD) is on in Sydney during November and running concurrently with the ICFTD 2018 program will be a specialist day on Tuesday 13 November focused on issues and challenges for carers.

Thank you to everyone who supported our Batemans Bay Walk on Sunday 26 August. Although there was a bit of rain overnight, the morning sun shone brightly. Many wonderful families and friends gathered to show their support for people with motor neurone disease. Thank you to the local Lions Club for their yummy sausage sizzle and the many stall holders who supported the Walk. A special thank you to the large contingent who made the trek across from Young and to the Go Go Girls who raised over $4500. It was a great day with over $11,500 raised.

We all want more people to be talking about motor neurone disease. 'Baker and the Beast' is an ABC Radio Life Matters 5 part series that first aired during August 2018. It is a no holds barred account of how one family and a community of friends are responding to a disease that has no cure. Mother of three, Cath Baker knows the beast that is motor neurone disease (MND). As a critical care nurse she’d seen what this disease did to her friend Angie Cunningham. Then, in the cruellest of coincidences, Cath too was diagnosed. You can read more or listen to/download the series here.

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