Blog

Each year the Allied Professionals Forum (APF) is held the day before the ALS/MND International Symposium. The APF is for allied health professionals from across the globe to come together to share, hear and reflect on how to better support people living with MND at the practical level. In December 2016 there were 16 presentations and over 250 attendees. Gina Svolos, Manager Support Services, and Kristina Dodds, Education and Carer Support Program Coordinator, were very fortunate to be able to attend and represent MND NSW. Kristina was one of the presenters and here is their report.

The first session of the day covered the latest innovations on message and voice banking for people with MND and communication technology.

MND NSW is holding a series of workshops this year for allied health staff (occupational therapists, speech pathologists, dietitians and physios) who work with people with MND who are under 65 and have an NDIS (National Disability Insurance Scheme) plan. The first of these was held on Thursday 9 February on the Central Coast. We had a great turn with about 20 allied health professionals attending, with the majority of those attending working as solo private practitioners. They wanted to know more about MND, working in a multidisciplinary way as a solo practitioner and 'MND and the NDIS'.

There was a lot of discussion around the adequacy of NDIS plans people with MND have had approved.

The MND NSW e-news February 2017 edition was emailed to members and subscribers last week. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.  

MND NSW members, families and supporters in the ACT or visiting Canberra are invited to attend a morning tea event at Parliament House Canberra on Wednesday 22 March. On this day, the Neurological Alliance Australia (NAA) will be conducting a special briefing for the Parliamentary Friends Group meeting of the Members of the NAA.

Last September the inaugural Rock to River Row raised $2,500 in support of MND NSW. Over five days the team of Jeff Huyben, Stuart Ord, Adam Thompson and Brett Wheeler rowed 500 kms on rowing machines in locations from Uluru to Alice Springs. We thank the team for their stellar effort and support.