MND NSW e-news March 2019
The MND NSW e-news March 2019 edition was emailed to members and subscribers on 1 March. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.
The MND NSW e-news March 2019 edition was emailed to members and subscribers on 1 March. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.
A big thank you to the staff from the Department of the Environment and Energy in Canberra for the continued support with their Ice Bucket Challenge event. The event, known as The Scott Lisle Memorial Ice Bucket Challenge, is now in its fourth year and is held in memory of a former colleague. A special thank you to Tara McGowan and Phil Bates who coordinated the event which raised a fantastic $8,329. Pictured is Finn Pratt, Secretary of the Department of the Environment and Energy.
Can you help us make Cornflower Blue Day our biggest yet? We are looking for volunteers to assist at the following stations from 7am to 10.30am on Friday 10 May, selling MND NSW merchandise and collecting donations.
* Central Station
* Martin Place Station
* Town Hall Station
* Bondi Junction Station
* Circular Quay Station
Contact Sarah at
Congratulations to North Cronulla FUNKY who recently won Under 23 Men at the 2019 ASRL Open at Elouera Beach. Love your support guys.
Photograph credit to Malcolm Trees and Brendon Grant.
For many people living with MND, appropriate aged care and support which can and should be delivered within a person’s own home, is completely unavailable to them. Many more are struggling to even achieve a fundamental level of support. This is unacceptable. The current Royal Commission into Aged Care in Australia has primarily focussed on the experience of older Australians in residential settings. This only represents part of the substandard care older people are experiencing through our aged care system. Depriving someone of the right to remain living in their own home, simply because of an unavailability of in home care packages is also substandard care. Now is the time to add our voices to the discussion and provide a very clear message to the investigators and to the decision makers that people living with MND want, need and expect to access their care, their way in their own homes.You can make a submission or have your voice heard.