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News

Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

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04 July 2025

Community Fundraising Champions – Jo Moroney

Since 2015, Jo Moroney has been hosting the Dale’s Day cricket match in honour of her son Dale Kenny.Sadly, Dale was diagnosed with MND when he was ju...
26 June 2025

Hadrian’s Wall Walk for MND NSW – 135 kilometres in 6 days

Bev and Steven recently set off on an epic trek along Hadrian's Wall in support of MND NSW. Thank you for your amazing fundraising efforts, and for sh...
13 June 2025

MND NSW Winter Appeal 2025 - A Letter from Nick

In early 2025, Anna said goodbye to her husband Nick, following his brave battle against MND. Anna and Nick shared many happy times together, but as h...
12 June 2025

Reduce the Risk of Trips and Falls this April Falls Month

April Falls Month is an annual campaign that encourages everyone to assess their home and implement strategies to reduce the risk of falls. ...
10 April 2025

Manual Handling for Carers

As carers we often find ourselves doing tasks that we never imagined we would be doing to support the people we love the most, especially with daily l...
10 April 2025

Miscellaneous Items Available from FlexEquip

If you can't find the equipment you need in the FlexEquip standard range, check out the Miscellaneous Items category on the FlexEquip website—you migh...
04 April 2025

Top-5 Frequently Asked Questions from March 2025

The first quarter of 2025 has passed, and the MND NSW Info Line has responded to over 300 enquiries during this time. People have reached out with a v...
03 April 2025

Guest Speaker Announcement: Professor Matthew Kiernan AM

We are thrilled to announce Professor Matthew Kiernan AM as the guest speaker for our annual Day of Hope and Remembrance. Professor Kiernan is the Chi...
20 March 2025

“Keep exploring and making memories” Ron’s Travel Story and Must-Read Review

With good preparation, it is possible to overcome the challenges that travelling with MND presents. Knowing what services you’ll need and organising t...
17 March 2025

Make Your Choices Matter: National Advance Care Planning Week

Advance care planning is all about ensuring you receive the care you choose should you be unable to communicate your preferences or make decisions. Na...
17 March 2025

Dysphagia is common for people living with MND: So, what is it?

Simply put, dysphagia means difficulty swallowing. According to Speech Pathology Australia, dysphagia can be any problem with the muscles in the mouth...
17 March 2025

Open the Gates!..to Carer Gateway

As carers, we often spend a lot of our time looking after others and sometimes we forget or don’t prioritise time to find out what supports are availa...