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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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The School of Psychology at the University of Adelaide is looking for volunteers to complete a brief survey about mental health and ageing. The survey will take about 15 minutes and you can enter the draw to win a $150 EFTPOS gift card. The information from the survey will contribute to understanding how mental health symptoms differ for men and women across the lifespan, leading to better recognition and diagnosis of mental health problems. Take the survey The study has been approved by the University of Adelaide Human Research Ethics Committee (approval number H-2019-109).

Leading international ALS/MND researchers are providing the MND community with the opportunity to ask questions about latest research advances from around the world at the 2019 International Ask the Experts on 2 December in Perth. If you can't attend, register for the live stream. Speakers include Professor Matthew Kiernan AM - (Australia), Professor Ammar Al Chalabi (UK) and Professor Merit Cudkowicz (USA).

ALS Untangled is an international network of physicians and researchers investigating alternative and off-label treatments for ALS/MND. People with motor neurone disease (known as amyotrophic lateral sclerosis or ALS in some parts of the world) often consider alternative treatments, based on information gleaned from the internet. These can be expensive and some are potentially harmful. Moreover, the evidence presented for the efficacy and safety of these treatments is often sketchy and frequently inaccurate.

We have scheduled two online Chat and Connect sessions to be held on Wednesday 18 September 2019. This is an exciting development for us as we look forward to being able to connect with our MND Community right across NSW and ACT through our online platform. If you have internet access via a smart phone, tablet, pc or laptop then you will be able to access the session. Find out more here.

Over 150 occupational therapists, speech pathologists, physiotherapists, dietitians, social workers, COS, MND Clinic Coordinators, doctors and others from across NSW and beyond attended the 8th Biennial MND NSW Special Interest Group (SIG) workshop on 2 July 2019 at West Ryde. This year the MND SIG workshop was at capacity six weeks out from the event. It is a positive sign of the commitment clinicians and community care professionals who work with people living with MND have to improving their knowledge and clinical practice for the benefit of those living with the disease.

The ALS MND Patient Fellows Program helps people with ALS MND to participate in the largest annual symposium dedicated to ALS MND research.  The 2019 International Symposium on ALS MND will be held 4-6 December 2019 in Perth, Australia. The ALS MND Patient Fellows Program anticipate funding up to five Patient Fellowships for the Symposium and applications for a Fellowship close 19 August 2019. People diagnosed with ALS or MND may apply.

MND Australia, in partnership with MND WA, is proud to host the International ALS/MND meetings in Perth in 2019. This will be an opportunity for the Australian MND community to come together with their peers and leading international researchers from around the world to present and debate key innovations in their respective fields. All meetings will be held at the Perth Convention and Exhibition Centre.

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