Living with MND
Living with MND
|
In this section you will find information about motor neurone disease and some suggestions for those who have just been diagnosed. What is MND? Nerve cells (neurones) control the muscles that enable us to move around, speak, breathe and swallow. Motor neurone disease is the name given to a group of diseases in which the neurones fail to work normally. Muscles gradually weaken and waste. The effects of motor neurone disease - initial symptoms, rate and pattern of progression, and survival time after diagnosis vary significantly from person to person.
Just diagnosed People who receive a diagnosis of any serious illness, and those close to them, are very likely to have feelings of shock, anger and despair. This is especially true when people, who are fit, well and active, develop very early signs of motor neurone disease (MND). Some people like to take time to think about what is going on before they want more information. Other people feel the need to talk to someone straight away. When hearing about a diagnosis of motor neurone disease, the only certainty is that everyone will react and respond in their own way. You might like to...
The Living Better for Longer evidence-based fact sheets The MND Australia ‘Living Better for Longer' fact sheet series explores interventions that research has shown to help people live better for longer with motor neurone disease.
Living with MND events MND NSW conducts regular education, information and other events for people living with motor neurone disease, family members, carers and friends. These are usually held in Sydney at the MND NSW Centre in Gladesville or other local venues. Sessions are also scheduled in other areas of NSW and in the ACT. There is usually no charge to attend an MND NSW education, information or other event for people lving with MND. This includes the person with motor neruone disease, family member/s, carer or friend. However, bookings are essential.
|
|
