Amy Critchley, MND NSW board member writes - I heard the news while sitting in an open plan public service cubicle in Canberra. She said ‘It’s the one we didn’t want...it’s motor...neurone...disease’ and then just broke down crying on the phone.
I said several calming platitudes, while simultaneously googling MND at my workstation. I did not know a thing about it. The first thing I saw was a prognosis of 1-2 years on whatever website I’d opened up. I sat frozen with shock and the rest of the conversation is a blur.